Support today, hope for tomorrow
Support helpline: 01582 798911 other ways to get in contact

1083 individual families benefited from Rett UK support last year
an increase of 57% on the previous year!

Our team have had over 4500 support contacts with families, up 119%! We are here for you. You are not alone.

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New diagnosis? Transition or something has changed? We can help.

About Rett syndrome

What is Rett syndrome and how is it diagnosed?
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Everything that is going on at Rett UK.

susanne and mia


Guest blog: Many thanks to Susanne Crosby, whose daughter Mia has Rett syndrome for letting us share her blog originally written for Scope after Susanne was involved with their Face […]

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Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I’m not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can’t thank them enough!

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