Support today, hope for tomorrow
Support helpline: 01582 798911 other ways to get in contact
Rett syndrome is a severe, life long neurological disorder.

Help and support is only a phone call away, whether you are a parent carer or a professional.

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Over 800 individual families benefited from Rett UK support last year
an increase of 83% on the previous year!

Our team have had 3683 support contacts with families, up 119%! We are here for you. You are not alone.

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How we can help

New diagnosis? Transition or something has changed? We can help.

About Rett syndrome

What is Rett syndrome and how is it diagnosed?
Find out all you need to know.

How you can help

Find out ways in which you can help raise funds and organise events.

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Claire milne

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Real families, real stories – the founder of Rett UK shares her experiences What would it feel like if someone told you that you that you weren’t able to make […]

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Rett UK are a lifeline to us Rett Families. I don’t know what I would have done without them.

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