Support today, hope for tomorrow
Support helpline: 01582 798911 other ways to get in contact
Rett syndrome is a severe, life long neurological disorder.

Help and support is only a phone call away, whether you are a parent carer or a professional.

Find out more

1083 individual families benefited from Rett UK support last year
an increase of 57% on the previous year!

Our team have had over 4500 support contacts with families, up 119%! We are here for you. You are not alone.

Learn more

How we can help

New diagnosis? Transition or something has changed? We can help.

About Rett syndrome

What is Rett syndrome and how is it diagnosed?
Find out all you need to know.

How you can help

Find out ways in which you can help raise funds and organise events.

Calendar

<
>
Mo Tu We Th Fr Sa Su
Fundraising events Family events View all events

Want to receive Rett News?

Rett News is our quarterly magazine which is free to members. Become a member by clicking the link below.

Become a Member

Social Hub

Everything that is going on at Rett UK.

susanne and mia

Blog

Guest blog: Many thanks to Susanne Crosby, whose daughter Mia has Rett syndrome for letting us share her blog originally written for Scope after Susanne was involved with their Face […]

Read more

Tweets

Follow us

Testimonials

Rett UK are a lifeline to us Rett Families. I don’t know what I would have done without them.

Read story

Sign up

Already have an account? Sign in

Sign in

Not a Member? Sign up for free today