Support today, hope for tomorrow
Support helpline: 01582 798911 other ways to get in contact
Rett syndrome is a severe, life long neurological disorder.

Help and support is only a phone call away, whether you are a parent carer or a professional.

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Over 800 individual families benefited from Rett UK support last year
an increase of 83% on the previous year!

Our team have had 3683 support contacts with families, up 119%! We are here for you. You are not alone.

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How we can help

New diagnosis? Transition or something has changed? We can help.

About Rett syndrome

What is Rett syndrome and how is it diagnosed?
Find out all you need to know.

How you can help

Find out ways in which you can help raise funds and organise events.


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I wonder if anyone else who watched  Camila’s Kids Company: The Inside Story last night on BBC1 was left feeling very uneasy about how charities are run and scrutinised? How […]

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