Rett UK Helpline
We are here for you and you should not ever feel you are doing this alone. Whilst we cannot be there to help with practical issues, we can be contacted either by telephone, email and Facebook. Having someone to talk your concerns through with can be very helpful. We provide advice and support to everyone supporting a loved one with Rett syndrome – parents, carers, siblings, grandparents and the wider family. We also provide advice and information to professionals.
Our telephone Helpline is open 9am – 4.30pm, Monday to Friday for information, advice and guidance on all aspects of Rett syndrome and associated problems. For all your support questions and concerns please call: 01582 798911.
You can also email [email protected]
Or send us a message through our Facebook page.
Advocacy
Our Support Team is always happy to write letters on your behalf in cases where you may be struggling to get the support you need.
