Rett UK has built up an extensive team of volunteer Medical Advisers who aid our Family Support team in answering family’s questions. Our Medical Advisers also advise other professionals working with people with Rett syndrome. Rett UK’s Medical Advisers can advise us on most aspects of Rett syndrome, from genetics and symptoms to surgery and therapies.
Chief Medical Advisers:
Dr Daniel Lumsden is the lead clinician at the Rett Syndrome specialist clinic at the Evelina Children’s Hospital.
Professor Angus John Clarke DM, FRCP, FRCPCH Cardiff University and University Hospital of Wales, Cardiff
Rett Specialist, Clinic Lead
Professor Clarke is a custodian of British Isles Rett Syndrome Survey; research into clinical and genetic aspects of Rett syndrome and some of the atypical forms of Rett syndrome; has the goal of establishing clinical trials of novel treatments for Rett syndrome in collaboration with the team of physiologists in Bristol (Abdala, Kendrick, Paton).
Rett UK Medical Advisors
- Prof. Jill Clayton-Smith, Consultant Clinical Geneticist
- Helen Cockerill, Clinical Expert Speech & Language Therapist
- Dr Bronwyn Kerr, Consultant Clinical Geneticist
- Gilly Martin , Specialist Physiotherapist
- Cindy-Jo Morison, Principal Music Therapist Northumberland Tyne and Wear NHS Foundation Trust
- Dr C Troake , Specialist Post Mortem Coordinator
- Dr Stacey Clough, Specialist Registrar in Special Care Dentistry
- Dr Alex Gibson, Consultant Spinal Surgeon at Royal National Orthopaedic Hospital
- Dr Adrian Kendrick, Consultant Clinical Scientist in the Department of Respiratory Medicine, University Hospitals, Bristol,
- Dr Jane Williams, Consultant Paediatrician, Nottingham Children’s Hospital
- Dr Cochavit Elefant, Head of Music Therapy Programme, University of Haifa, Israel
- Dr Meir Lotan, Physiotherapist and Senior Lecturer at School of Health Sciences, Israel
- Dr Dewar, Gastroenterologist and Physician, University of Lewisham
If you would like to contact one of our advisers, please contact Julie on 01582 798911
Dr Alison Kerr OBE MB ChB, DCH, FRCP, MD. Worked at Glasgow University and Royal Hospital for Sick Children. Retired in 2005 but had been a key advisor for Rett UK since 1985. Area of Interest with Rett syndrome: clinical profile of the disorder, it’s development and neurological impact throughout life.
Dr Richard Morton, Consultant Paediatrician at Derbyshire Children’s Hospital
Dr David Harrison, Consultant Orthopaedic Surgeon at Stanmore, Royal National Orthopaedic Hospital
Sally-Ann Garrett, Speech and Language Therapist
Lyn Weekes, Physiotherapist