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Rett Syndrome
Services
Resources
Research
Fundraising
Events
Communication
- Webinars
- Courses

Christmas

Christmas Cards in 5 Designs

Peace, Hope and Joy Christmas Card
£4.50
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Catherine Kelly at Christmas
£0.50
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Kissing Robins
£2.99
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Penguins (Time Together)
£2.99
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Angel White Holly Christmas Card
£4.50
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Patience: by Victoria Scott (Hardcover)
£20.00
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Made with Love by Kay

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Social Hub

Everything that is going on at Rett UK.

Rett UK

Rett UK12 hours ago

🚴 Please join us in sending a massive good luck to Dennis Tailor who is currently undertaking the incredibly impressive challenge of cycling from London to Barcelona AND back 🚴

Dennis started his journey on 10th June at St Paul's Cathedral in London and will be cycling all the way to Sagrada Familia in Barcelona...and then back to St Paul's! The entire journey spans an epic 2,400 miles ‼️

So far, Dennis has cycled all the way to Ruffec in France where the temperatures reached 42 degrees yesterday 🇫🇷

Dennis is embarking on this challenge to raise money for Rett UK and the Friends of CME Trust! You can read more about his story, the charities and donate to his fundraiser via the link below:
🔗 www.stewardship.org.uk/pages/barcelonabacktolondon

You can keep up to date with his journey and see pictures of the beautiful landscapes via his Facebook page Dennis Fundraising 📱

Good luck Dennis and thank you again for taking on this challenge for Rett UK 💜💚

#RettUK #RettSyndrome #Challenge #Fundraising #Cycling #LondontoBarcelona #StPauls #SagradaFamilia #London #Barcelona

18 1 2 View on Facebook

Rett UK1 day ago

📝 Rett Insights #3: Behaviour 📝

It's time to take a look at our next Rett Insight, exploring Behaviour, and more specifically distressed/challenging behaviour 💜

Read this Insight to learn more about what exactly distressed behaviour can look like and ways to help manage and resolve these behaviours. As always, we're also highlighting the key resources Rett UK offers to support this symptom.

🔗 You can access all the links to learn more by scanning the QR code or clicking the link below:
➡️ https://www.rettuk.org/Behaviour

Each Rett Insight will also be uploaded to our website as a PDF with clickable links to create an easy-access directory! This is something we are still working on and will update you soon.

Be sure to keep an eye on our social media channels each week to see a new Rett Insight 👀

#RettUK #RettSyndrome #RettInsights #Behaviour #FamilySupport

9 5 View on Facebook

Rett UK2 days ago

Didn’t get a spot in the 2026 TCS London Marathon? Don’t hang up your running shoes just yet! 🙌💜

Brighton Marathon Weekend is calling!
📅 Sunday, 12th April 2026
🏃‍♂️ Powered by the same legendary team behind the London Marathon

Here’s what’s waiting for you:
✨ A scenic route through vibrant Brighton
🎉 Epic crowd support and an electric atmosphere
🌊 A show-stopping finish right on the seafront

Places are going fast – don’t miss your chance to be part of the magic!
🔗 Head to the links in the comments to request your place now 👇

#londonmarathon #ballot #brightonandhove #brightonweekend #brightonmarathon #RunForACause #rettsyndrome #running #challenge

2 View on Facebook

Rett UK3 days ago

📢 Calling all families living in Hampshire 📢

Are you looking for a fun day out and a chance to meet other families with Rett syndrome in your area this weekend? 🌤️ 🎉

Join us for a fun day open to all the family! Our CommEd Support team members Lucy and Gill will be on hand to facilitate the event and ensure everyone has a lovely time together 💚

🗓️ Sunday 22nd June
⏰ 10:00-12:00
📍 Royal Victoria Park

If you’re interested in joining, simply complete our registration form via the link below ⬇️
🔗 https://forms.office.com/e/79CcH22yMS

Mums, dads, other carers, siblings, children and adults with Rett syndrome are all welcome! These activities have been chosen to suit any age, from toddlers to adults, and offer accessible venues, toilets and parking 💜

🚨 Please note, the sign-up form closes TODAY, Thursday 19th June 🚨

Any questions please let us know!
We hope to see you there 🥰

#RettUK #RettSyndrome #OutandAboutGroups #Summer #FamilyActivities #Hampshire #RoyalVictoriaPark

2 View on Facebook

Rett UK5 days ago

📢 Calling all families living in the North West & North Wales 📢

Are you looking for a fun day out and a chance to meet other families with Rett syndrome in your area this weekend? 🌤️ 🎉

Join us for a fun day open to all the family! Our CommEd Support team members Carly and Rebecca will be on hand to facilitate the event and ensure everyone has a lovely time together 💚

🗓️ Saturday 21st June
⏰ 10:00-12:00
📍 Delamere Forest

If you’re interested in joining, simply complete our registration form via the link below ⬇️
🔗 https://forms.office.com/e/HdsmeD6zVz

Mums, dads, other carers, siblings, children and adults with Rett syndrome are all welcome! These activities have been chosen to suit any age, from toddlers to adults, and offer accessible venues, toilets and parking 💜

🚨 Please note, the sign-up form closes at 15:00 (3pm) on Thursday 19th June 🚨

Any questions please let us know!
We hope to see you there 🥰

#RettUK #RettSyndrome #OutandAboutGroups #Spring #FamilyActivities #NorthWest #England #NorthWales #Wales #DelamereForest

1 2 View on Facebook

Rett UK6 days ago

💜 What’s Happening at Rett UK This Week? 💚
Let’s take a look at what we’ve got coming up this week! We've got lots of events happening so make sure to mark them in your calendars so you don’t miss out 🗓️

Online Peer Session 💻
🗓️ Wednesday 18th June
⏰ 13:00 - 14:00
🔗 Zoom: https://us06web.zoom.us/j/85195437474?pwd=9Zjat03ujh4JaxQRueGvRyDVMtZpQW.1

Peer Group for Adults 🖥
🗓️ Thursday 19th June
⏰ 19:00 - 20:00
🔗 Zoom: https://us06web.zoom.us/j/87330351034?pwd=WJJC8OiGkRWbSISFF8XXUf5bFUPzGv.1

Rett Gents 🗣
🗓️ Thursday 19th June
⏰ 20:00 - 21:00
🔗 Teams: https://teams.microsoft.com/meet/33854098519?p=mQFKnFo3nBncXhvMxJ

North West / North Wales Out & About Group ☀️
🗓️ Saturday 21st June
⏰ 10:00-12:00
📍 Delamere Forest
🚨 Registration Deadline: 3pm on Thursday 19th June
🔗 Registration Form: https://forms.office.com/e/HdsmeD6zVz

Midlands Out & About Group ☀️
🗓️ Saturday 21st June
⏰ 13:00-15:00
📍 Mary Stevens Park
🚨 Registration Deadline: 3pm on Thursday 19th June
🔗 Registration Form: https://forms.office.com/e/Ft5j2QUpYz

Hampshire Out & About Group ☀️
🗓️ Sunday 22nd June
⏰ 10:00-12:00
📍 Royal Victoria Park, Southampton
🚨 Registration Deadline: 3pm on Thursday 19th June
🔗 Registration Form: https://forms.office.com/e/79CcH22yMS

--
You can find links to all our events here too:
🔗 linktr.ee/rettuk

Any questions please get in touch!
We hope you have a lovely week 💜💚

#RettUK #RettSyndrome #WeeklySchedule #PeerSession #OnlinePeerSession #PeerGroupForAdults #RettGents #DiscussionGroup #OutandAboutGroup #NorthWest #NorthWales #DelamereForset #Midlands #MaryStevensPark #Hampshire #RoyalVictoriaPark

3 1 14 View on Facebook

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Testimonials

Becky Jenner

Gwenda Dimmock

Rett UK are a lifeline to us Rett Families. I don't know what I would have done without them.

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Elizabeth Allen

Caring and sharing. Informative and supportive. Great stuff for all those families. X

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Joanna Tomlin

Exceptional Support!

Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I'm not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can't thank them enough!

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Peace, Hope and Joy Christmas Card

Catherine Kelly at Christmas

Kissing Robins

Penguins (Time Together)

Angel White Holly Christmas Card

Patience: by Victoria Scott (Hardcover)

Made with Love by Kay

Social Hub

Everything that is going on at Rett UK.

Rett UK

Latest tweets

Testimonials

Becky Jenner

Gwenda Dimmock

Elizabeth Allen

Elizabeth Allen

Joanna Tomlin

Exceptional Support!

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