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Rett Syndrome
Services
Resources
Research
Fundraising
Webinars
Events
Courses

Christmas

Christmas Cards in 5 Designs

Peace, Hope and Joy Christmas Card
£4.50
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Catherine Kelly at Christmas
£0.50
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Kissing Robins
£2.99
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Penguins (Time Together)
£2.99
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Angel White Holly Christmas Card
£4.50
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Patience: by Victoria Scott (Hardcover)
£20.00
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Made with Love by Kay

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Social Hub

Everything that is going on at Rett UK.

Rett UK

Rett UK2 days ago

🎉 Congratulations to Annette, Renata and Christine who have successfully completed their sponsored skydive 🎉

After initially being postponed due to the weather, the group were finally able to take the leap 🪂 Between them, they have raised around £2,000 for Rett UK and made a lot of people aware of Rett syndrome!

Annette supports 9 year old Niamh, who has Rett syndrome and who inspired them to embark on this challenge! (scroll to see a lovely picture of the two of them together 🥰)

Here's what Annette had to say about the experience:
"I've been working with Niamh for 5 years now and I know her family are very grateful to Rett UK for all the support they receive.

I'm glad that our fundraising will help a little towards all that you do. We are so happy that Rett UK will benefit from all the donations and be able to continue their support to families."

Well done and thank you all 💜💚

If you're feeling inspired to follow their lead, why not sign up for a sponsored skydive yourself?! 🪂
You can find more info and register here:
🔗 https://booking.skylineevents.co.uk/book/y13dq5zj?charity=10043&referrer=charity&siteid=50&promo=rettuk%C2%A30

#RettUK #RettSyndrome #Skydive #SponsoredSkydive #Fundraiser

6 2 View on Facebook

Rett UK5 days ago

🏃‍♀️ Good luck to Rhiannon Louden and Rhian Taylor who are both taking part in the Great Scottish Run today in aid of Rett UK 🏃‍♀️

Rhiannon is running on behalf of her daughter Poppy, who was diagnosed with Rett syndrome in April this year 💜
You can read more about their story here:
🔗 https://ajbellgreatscottishrun2024.enthuse.com/pf/rhiannon-louden

Meanwhile, Rhian has chosen to take on her first 10k race for us, as Rett UK is a charity close to her family’s heart!
You can read more about her journey here:
🔗 https://ajbellgreatscottishrun2024.enthuse.com/pf/rhian-taylor

Good luck and enjoy the Glasgow views 🍀

#RettUK #RettSyndrome #GreatScottishRun #10krjn #Glasgow

12 1 View on Facebook

Rett UK1 week ago

💜 October is Global Rett Awareness Month 💜

This month marks October Awareness, an important opportunity to help us spread awareness of Rett syndrome! It’s also a wonderful chance to take on your own fundraising projects to raise donations for Rett UK and allow us to continue providing support to families across the UK 🥰

📣 Make Some Noise About Rett Syndrome 📣

Take a look through this posts to see some ideas for your own fundraisers! Or if you’ve got any other ideas we’d love you to get creative 🤩

If you want to get any fundraising supplies or want to discuss support with your projects during this month, please email:
📧 info@rettuk.org

#RettUK #RettSyndrome #OctoberAwareness #RettAwareness #GlobalAwarenessMonth #Fundraising #PurpleforRett

14 2 19 View on Facebook

Rett UK1 week ago

🍻 Calling all dads and other male relatives of people with Rett syndrome...Beer and Banter is back TONIGHT🍻

🗓️ Thursday 3rd October
⏰ 20:00 - 21:00
🖥 Microsoft Teams (just click on the link below 🔗)

Join Brett, dad of Charlotte, and Steve, dad of Lydia, for an informal Zoom meeting where you can discuss your experiences and stories, and get support in a fun setting!

If you’re interested, you can join the call directly through the Teams link ⬇️

🔗 https://rettuk.us10.list-manage.com/track/click?u=719951f4cabe3e657ba0d2553&id=514625d6ea&e=66fe34925f

#RettUK #RettSyndrome #BeerandBanter

5 1 View on Facebook

Rett UK1 week ago

Huge thanks and appreciation to John and Lucy Wyatt, who recently held ‘Jade’s Annual Golf Day’, in loving memory of John’s daughter Jade 💜
A fantastic turnout in beautiful sunshine ☀️
With almost 50 friends and golfers ⛳️🏌️‍♀️ attending and giving so generously - raising £3,000 for Rett UK.
Special thanks to Bobby Arthey and Gary Pooley for their wonderful support and help.

23 2 1 View on Facebook

Rett UK1 week ago

🚨 Will you be joining our brand new Modelling session this Thursday? 🚨

Don’t forget that this week marks our first Modelling session! Join our communication team for an interactive session to discuss and learn about modelling with a range of devices and systems (including TD Snap, Super Core and paper-based resources) 💬

🗓 Thursday 3rd October
⏰ 12:00 - 13:00
🔗 On Zoom (link below)

🚨 Please note: these are replacing our Communication Drop-In sessions which will now only take place on the 3rd Tuesday of the month 🚨

Each month there will be a different topic and the theme for the first session is Expressing Opinions 💭

No need to pre-register, simply click on the link below and join the session:
🔗 https://us06web.zoom.us/j/81218346293?pwd=bc7IfnHvQy4eUw7dgutiKdhMg9aqJq.1

Read more info in the post below and if you have any other questions please get in touch 💜

#RettUK #RettSyndrome #ModellingSession #Modelling

2 1 2 View on Facebook

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Testimonials

Becky Jenner

Gwenda Dimmock

Rett UK are a lifeline to us Rett Families. I don't know what I would have done without them.

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Joanna Tomlin

Exceptional Support!

Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I'm not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can't thank them enough!

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Elizabeth Allen

Caring and sharing. Informative and supportive. Great stuff for all those families. X

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Peace, Hope and Joy Christmas Card

Catherine Kelly at Christmas

Kissing Robins

Penguins (Time Together)

Angel White Holly Christmas Card

Patience: by Victoria Scott (Hardcover)

Made with Love by Kay

Social Hub

Everything that is going on at Rett UK.

Rett UK

Latest tweets

Testimonials

Becky Jenner

Gwenda Dimmock

Joanna Tomlin

Exceptional Support!

Elizabeth Allen

Elizabeth Allen

Sign up

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