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Rett Syndrome
Services
Resources
Research
Fundraising
Events
Communication
- Webinars
- Courses

Christmas

Christmas Cards in 5 Designs

Peace, Hope and Joy Christmas Card
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Catherine Kelly at Christmas
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Kissing Robins
£2.99
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Penguins (Time Together)
£2.99
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Angel White Holly Christmas Card
£4.50
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Patience: by Victoria Scott (Hardcover)
£20.00
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Made with Love by Kay

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Social Hub

Everything that is going on at Rett UK.

Rett UK

Rett UK16 hours ago

The Kelpies

📢 Calling all families living in Central Scotland 📢

Are you looking for a fun day out and a chance to meet other families with Rett syndrome in your area this weekend? 🌤️ 🎉

Join us for a fun day open to all the family! Our CommEd Support team member Tracey will be on hand to facilitate the event and ensure everyone has a lovely time together 💚

🗓️ Saturday 14th June
⏰ 11:00-13:00
📍 The Kelpies at The Helix

If you’re interested in joining, simply complete our registration form here:
🔗 https://forms.office.com/e/4YhkhWD1d9

Mums, dads, other carers, siblings, children and adults with Rett syndrome are all welcome! These activities have been chosen to suit any age, from toddlers to adults, and offer accessible venues, toilets and parking 💜

🚨 Please note, the sign-up form closes at 15:00 (3pm) on Thursday 12th June 🚨

Any questions please let us know!
We hope to see you there 🥰

#RettUK #RettSyndrome #OutandAboutGroups #Spring #FamilyActivities #CentralScotland #Scotland #Kelpies

2 2 2 View on Facebook

Rett UK6 days ago

📝 Rett Insights #2: Apraxia 📝

It's time to take a look at our next Rett Insight, exploring Apraxia, a key symptom of Rett syndrome 💜

Read this Insight to learn more about what apraxia is and how exactly it can impact individuals with Rett syndrome. As always, we're also highlighting the key resources Rett UK offers to support this symptom.

🔗 You can access all the links to learn more by scanning the QR code or clicking the link below:
➡️ https://www.rettuk.org/BrainCharityApraxia

Each Rett Insight will also be uploaded to our website as a PDF with clickable links to create an easy-access directory! This is something we are still working on and will update you soon.

Be sure to keep an eye on our social media channels each week to see a new Rett Insight 👀

#RettUK #RettSyndrome #RettInsights #Apraxia #FamilySupport

92 63 View on Facebook

Rett UK6 days ago

💜 Lily’s Story 💜

Thanks to @leytonorientfc, Lily and her brother George had a magical match day experience they’ll never forget. From meeting players to walking out on the pitch, the love and support meant the world.

🔗 - https://www.efl.com/news/2025/june/05/lilys-story-the-os-raise-awareness-of-rare-brain-disorder-to-affect-mostly-young-girls/

#RettSyndrome #RettUK

The Official home of the English Football League

21 View on Facebook

Rett UK7 days ago

🗓️ What's Happening at Rett UK in June - Monthly Schedule 🗓️

Can you believe we’re halfway through 2025? We’ve had some really amazing events so far this year, and there’s still plenty more to come 🥳

🚨 Don’t miss our Summer Out & About Groups, taking place across the UK this month! They’re a great chance to meet other families in your local area and have fun with our CommEd Support Team 🚨

More information on each event will be posted accordingly. But for now, be sure to mark these events in your calendar so you don't miss anything 🗓️

You can find the access links to all our events via our Linktree (in bio) as well as any additional support, fundraising and resources links!
🔗 https://linktr.ee/rettuk

Got any questions, let us know below 💜💚

#RettUK #RettSyndrome #MonthlyCalendar #WhatsHappeningAtRettUK #JuneSchedule

5 1 View on Facebook

Rett UK1 week ago

💜 What's Happening at Rett UK This Week? 💚
As we head into a new month, and summer is getting nearer... let's check out what events we've got coming up this week 🗓

Modelling Session 🖥
🗓️ Tuesday 3rd June
⏰ 12:00 - 13:00
🔗 Zoom: https://us06web.zoom.us/j/81218346293?pwd=bc7IfnHvQy4eUw7dgutiKdhMg9aqJq.1

Herts, Beds & Bucks Out & About Group
🗓️ Saturday 7th June
⏰ 10:00-12:00
📍 Countryways, Road Farm
🚨 Registration Deadline: 3pm on Thursday 5th June
🔗 Registration Form: https://forms.office.com/e/4tX94wJ2Ja

Any questions please get in touch!
We hope you have a lovely week 💜 💚

#RettUK #RettSyndrome #WeeklySchedule #ModellingSession #Modelling #OutandAboutGroup #HertsBedsBucks #Hertfordshire #Bedfordshire #Buckinghamshire

2 2 View on Facebook

Rett UK2 weeks ago

📝 Introducing...Rett Insights 📝

A brand new series highlighting different aspects of Rett syndrome, signposting you to our resources, factsheets, research, support services and much more!

Each week we’ll be posting a new insight onto our social media channels, as well as to our website - creating a directory of resources that’s easily accessible for everyone in the Rett UK community!

Kicking us off, let's take a look at our first Rett Insight on…
💜 Adult Living Options 💜

This Insight explores the various options for adults living with Rett syndrome and highlights resources and support that Rett UK currently offer!

🔗 You can access all the links to learn more by scanning the QR code or clicking the links below 🔗

An Introduction to Adult Living Options: https://www.rettuk.org/ALO
Living at Home: https://www.rettuk.org/LivingatHome
Residential Care: https://www.rettuk.org/ResidentialCare
Shared Lives: https://www.rettuk.org/SharedLives
Supported Living: https://www.rettuk.org/SupportedLiving

Each Rett Insight will also be uploaded to our website as a PDF with clickable links to create an easy-access directory! This is something we are still working on and will update you soon.

Be sure to keep an eye on our social media channels each week to see a new Rett Insight 👀

#RettUK #RettSyndrome #RettInsights #AdultLivingOptions #FamilySupport

7 2 View on Facebook

Latest tweets

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Testimonials

Elizabeth Allen

Caring and sharing. Informative and supportive. Great stuff for all those families. X

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Becky Jenner

Gwenda Dimmock

Rett UK are a lifeline to us Rett Families. I don't know what I would have done without them.

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Joanna Tomlin

Exceptional Support!

Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I'm not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can't thank them enough!

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Peace, Hope and Joy Christmas Card

Catherine Kelly at Christmas

Kissing Robins

Penguins (Time Together)

Angel White Holly Christmas Card

Patience: by Victoria Scott (Hardcover)

Made with Love by Kay

Social Hub

Everything that is going on at Rett UK.

Rett UK

Latest tweets

Testimonials

Elizabeth Allen

Elizabeth Allen

Becky Jenner

Gwenda Dimmock

Joanna Tomlin

Exceptional Support!

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