MECP2 gene
This is a picture of the MECP2 gene, the main gene responsible for causing Rett syndrome.
Useful Links for Families
The Naked Scientists – Genetics
Understanding the Human Genome Project – USA
Careers in Genetic Science – Cogent SSC
Social Hub
Everything that is going on at Rett UK.
Calling all adults with Rett syndrome! We'd love you to join our "Peer Group for Adults" 👥
Join us for an opportunity for adults with Rett syndrome to come together, connect, have fun and communicate!
The next session is taking place:
🗓 Thursday 17th July
⏰ 19:00 - 20:00
🔗 On Zoom: https://us06web.zoom.us/j/87330351034?pwd=WJJC8OiGkRWbSISFF8XXUf5bFUPzGv.1
These sessions will be facilitated by members of our CommEd Support Team, with activities and topics steered by the interests of the group!
There is no need for a formal communication system to be in place, any form of communication can be used (e.g. no tech, paper-based, eye gaze device). And there is absolutely no pressure or requirement to speak up - you can just come along and listen.
This is open to anybody over the age of 18 with Rett syndrome. Each person with Rett syndrome needs to be accompanied by a supporter.
To join our session THIS THURSDAY (17.07), simply click on the following link:
🔗 https://us06web.zoom.us/j/87330351034?pwd=WJJC8OiGkRWbSISFF8XXUf5bFUPzGv.1
Or enter the information below ⬇️
Meeting ID: 873 3035 1034
Passcode: 655822
If you have any questions or issues please get in touch 💜💚
#RettUK #RettSyndrome #PeerGroupForAdults
Join us for an opportunity for adults with Rett syndrome to come together, connect, have fun and communicate!
The next session is taking place:
🗓 Thursday 17th July
⏰ 19:00 - 20:00
🔗 On Zoom: https://us06web.zoom.us/j/87330351034?pwd=WJJC8OiGkRWbSISFF8XXUf5bFUPzGv.1
These sessions will be facilitated by members of our CommEd Support Team, with activities and topics steered by the interests of the group!
There is no need for a formal communication system to be in place, any form of communication can be used (e.g. no tech, paper-based, eye gaze device). And there is absolutely no pressure or requirement to speak up - you can just come along and listen.
This is open to anybody over the age of 18 with Rett syndrome. Each person with Rett syndrome needs to be accompanied by a supporter.
To join our session THIS THURSDAY (17.07), simply click on the following link:
🔗 https://us06web.zoom.us/j/87330351034?pwd=WJJC8OiGkRWbSISFF8XXUf5bFUPzGv.1
Or enter the information below ⬇️
Meeting ID: 873 3035 1034
Passcode: 655822
If you have any questions or issues please get in touch 💜💚
#RettUK #RettSyndrome #PeerGroupForAdults
Latest tweets
Follow us on X for the latest news and updates on Rett syndrome
#SupportTodayHopeForTomorrow
@RettUKTestimonials
Becky Jenner
Gwenda Dimmock
Rett UK are a lifeline to us Rett Families. I don’t know what I would have done without them.
Elizabeth Allen
Elizabeth Allen
Caring and sharing. Informative and supportive. Great stuff for all those families. X
Joanna Tomlin
Exceptional Support!
Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I’m not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can’t thank them enough!