Rett UK are a lifeline to us Rett Families. I don’t know what I would have done without them. Following diagnosis they were there for us supporting and advising and helped greatly. Their ongoing support is so valuable. There is always a friendly, supportive, empathetic person at the end of the phone to listen and help no matter what you need. The regional days, family weekends and support groups help us to meet other families and would not happen without Rett UK. A huge thank you to you all.