Social Hub
Everything that is going on at Rett UK.
Calling all families living in Central Scotland Are you looking for a fun day out and a chance to meet other families with Rett syndrome in your area this weekend?
Join us for a fun day open to all the family! Our CommEd Support team member Tracey will be on hand to facilitate the event and ensure everyone has a lovely time together
Saturday 14th June
11:00-13:00
The Kelpies at The HelixIf you’re interested in joining, simply complete our registration form here:
https://forms.office.com/e/4YhkhWD1d9Mums, dads, other carers, siblings, children and adults with Rett syndrome are all welcome! These activities have been chosen to suit any age, from toddlers to adults, and offer accessible venues, toilets and parking
Please note, the sign-up form closes at 15:00 (3pm) on Thursday 12th June Any questions please let us know!
We hope to see you there
#RettUK #RettSyndrome #OutandAboutGroups #Spring #FamilyActivities #CentralScotland #Scotland #Kelpies
Didn’t get a spot in the 2026 TCS London Marathon? Don’t hang up your running shoes just yet! 
Brighton Marathon Weekend is calling!
Sunday, 12th April 2026
Powered by the same legendary team behind the London Marathon
Here’s what’s waiting for you:
A scenic route through vibrant Brighton
Epic crowd support and an electric atmosphere
A show-stopping finish right on the seafront
Places are going fast – don’t miss your chance to be part of the magic!
Head to the links in the comments to request your place now 
#londonmarathon #ballot #brightonandhove #brightonweekend #brightonmarathon #RunForACause #rettsyndrome #running #challenge
Brighton Marathon Weekend is calling!
Sunday, 12th April 2026 Powered by the same legendary team behind the London MarathonHere’s what’s waiting for you:
A scenic route through vibrant Brighton Epic crowd support and an electric atmosphere A show-stopping finish right on the seafrontPlaces are going fast – don’t miss your chance to be part of the magic!
Head to the links in the comments to request your place now #londonmarathon #ballot #brightonandhove #brightonweekend #brightonmarathon #RunForACause #rettsyndrome #running #challenge
Calling all families living in Hampshire Are you looking for a fun day out and a chance to meet other families with Rett syndrome in your area this weekend?
Join us for a fun day open to all the family! Our CommEd Support team members Lucy and Gill will be on hand to facilitate the event and ensure everyone has a lovely time together
Sunday 22nd June 10:00-12:00 Royal Victoria ParkIf you’re interested in joining, simply complete our registration form via the link below
https://forms.office.com/e/79CcH22yMSMums, dads, other carers, siblings, children and adults with Rett syndrome are all welcome! These activities have been chosen to suit any age, from toddlers to adults, and offer accessible venues, toilets and parking
Please note, the sign-up form closes TODAY, Thursday 19th June Any questions please let us know!
We hope to see you there
#RettUK #RettSyndrome #OutandAboutGroups #Summer #FamilyActivities #Hampshire #RoyalVictoriaPark
Calling all families living in the North West & North Wales Are you looking for a fun day out and a chance to meet other families with Rett syndrome in your area this weekend?
Join us for a fun day open to all the family! Our CommEd Support team members Carly and Rebecca will be on hand to facilitate the event and ensure everyone has a lovely time together
Saturday 21st June 10:00-12:00 Delamere ForestIf you’re interested in joining, simply complete our registration form via the link below
https://forms.office.com/e/HdsmeD6zVzMums, dads, other carers, siblings, children and adults with Rett syndrome are all welcome! These activities have been chosen to suit any age, from toddlers to adults, and offer accessible venues, toilets and parking
Please note, the sign-up form closes at 15:00 (3pm) on Thursday 19th June Any questions please let us know!
We hope to see you there
#RettUK #RettSyndrome #OutandAboutGroups #Spring #FamilyActivities #NorthWest #England #NorthWales #Wales #DelamereForest
What’s Happening at Rett UK This Week? Let’s take a look at what we’ve got coming up this week! We've got lots of events happening so make sure to mark them in your calendars so you don’t miss out
Online Peer Session
Wednesday 18th June 13:00 - 14:00 Zoom: https://us06web.zoom.us/j/85195437474?pwd=9Zjat03ujh4JaxQRueGvRyDVMtZpQW.1Peer Group for Adults
Thursday 19th June 19:00 - 20:00 Zoom: https://us06web.zoom.us/j/87330351034?pwd=WJJC8OiGkRWbSISFF8XXUf5bFUPzGv.1Rett Gents
Thursday 19th June 20:00 - 21:00 Teams: https://teams.microsoft.com/meet/33854098519?p=mQFKnFo3nBncXhvMxJNorth West / North Wales Out & About Group
Saturday 21st June 10:00-12:00 Delamere Forest Registration Deadline: 3pm on Thursday 19th June Registration Form: https://forms.office.com/e/HdsmeD6zVzMidlands Out & About Group
Saturday 21st June 13:00-15:00 Mary Stevens Park Registration Deadline: 3pm on Thursday 19th June Registration Form: https://forms.office.com/e/Ft5j2QUpYzHampshire Out & About Group
Sunday 22nd June 10:00-12:00 Royal Victoria Park, Southampton Registration Deadline: 3pm on Thursday 19th June Registration Form: https://forms.office.com/e/79CcH22yMS--
You can find links to all our events here too:
linktr.ee/rettukAny questions please get in touch!
We hope you have a lovely week
#RettUK #RettSyndrome #WeeklySchedule #PeerSession #OnlinePeerSession #PeerGroupForAdults #RettGents #DiscussionGroup #OutandAboutGroup #NorthWest #NorthWales #DelamereForset #Midlands #MaryStevensPark #Hampshire #RoyalVictoriaPark
Happy Father’s Day to everyone in our Rett UK family Wishing every dad, granddad, carer/guardian and anyone else who celebrates it, a very Happy Father's Day from all of us here at Rett UK
We hope you’re all having a lovely day and are able to spend time with your family and loved ones
To celebrate, we'd love for you to comment below your messages of love, support and appreciation for all your loved ones
#RettUK #RettSyndrome #FathersDay #Celebrate #Dad
Calling all families living in Central Scotland Are you looking for a fun day out and a chance to meet other families with Rett syndrome in your area this weekend?
Join us for a fun day open to all the family! Our CommEd Support team member Tracey will be on hand to facilitate the event and ensure everyone has a lovely time together
Saturday 14th June 11:00-13:00 The Kelpies at The HelixIf you’re interested in joining, simply complete our registration form here:
https://forms.office.com/e/4YhkhWD1d9Mums, dads, other carers, siblings, children and adults with Rett syndrome are all welcome! These activities have been chosen to suit any age, from toddlers to adults, and offer accessible venues, toilets and parking
Please note, the sign-up form closes at 15:00 (3pm) on Thursday 12th June Any questions please let us know!
We hope to see you there
#RettUK #RettSyndrome #OutandAboutGroups #Spring #FamilyActivities #CentralScotland #Scotland #Kelpies
Didn’t get a spot in the 2026 TCS London Marathon? Don’t hang up your running shoes just yet!
Brighton Marathon Weekend is calling!
Sunday, 12th April 2026
Powered by the same legendary team behind the London Marathon
Here’s what’s waiting for you:
A scenic route through vibrant Brighton
Epic crowd support and an electric atmosphere
A show-stopping finish right on the seafront
Places are going fast – don’t miss your chance to be part of the magic!
Head to the links in the comments to request your place now
#londonmarathon #ballot #brightonandhove #brightonweekend #brightonmarathon #RunForACause #rettsyndrome #running #challenge
Brighton Marathon Weekend is calling!
Sunday, 12th April 2026 Powered by the same legendary team behind the London MarathonHere’s what’s waiting for you:
A scenic route through vibrant Brighton Epic crowd support and an electric atmosphere A show-stopping finish right on the seafrontPlaces are going fast – don’t miss your chance to be part of the magic!
Head to the links in the comments to request your place now #londonmarathon #ballot #brightonandhove #brightonweekend #brightonmarathon #RunForACause #rettsyndrome #running #challenge
Calling all families living in Hampshire Are you looking for a fun day out and a chance to meet other families with Rett syndrome in your area this weekend?
Join us for a fun day open to all the family! Our CommEd Support team members Lucy and Gill will be on hand to facilitate the event and ensure everyone has a lovely time together
Sunday 22nd June 10:00-12:00 Royal Victoria ParkIf you’re interested in joining, simply complete our registration form via the link below
https://forms.office.com/e/79CcH22yMSMums, dads, other carers, siblings, children and adults with Rett syndrome are all welcome! These activities have been chosen to suit any age, from toddlers to adults, and offer accessible venues, toilets and parking
Please note, the sign-up form closes TODAY, Thursday 19th June Any questions please let us know!
We hope to see you there
#RettUK #RettSyndrome #OutandAboutGroups #Summer #FamilyActivities #Hampshire #RoyalVictoriaPark
Calling all families living in the North West & North Wales Are you looking for a fun day out and a chance to meet other families with Rett syndrome in your area this weekend?
Join us for a fun day open to all the family! Our CommEd Support team members Carly and Rebecca will be on hand to facilitate the event and ensure everyone has a lovely time together
Saturday 21st June 10:00-12:00 Delamere ForestIf you’re interested in joining, simply complete our registration form via the link below
https://forms.office.com/e/HdsmeD6zVzMums, dads, other carers, siblings, children and adults with Rett syndrome are all welcome! These activities have been chosen to suit any age, from toddlers to adults, and offer accessible venues, toilets and parking
Please note, the sign-up form closes at 15:00 (3pm) on Thursday 19th June Any questions please let us know!
We hope to see you there
#RettUK #RettSyndrome #OutandAboutGroups #Spring #FamilyActivities #NorthWest #England #NorthWales #Wales #DelamereForest
What’s Happening at Rett UK This Week? Let’s take a look at what we’ve got coming up this week! We've got lots of events happening so make sure to mark them in your calendars so you don’t miss out
Online Peer Session
Wednesday 18th June 13:00 - 14:00 Zoom: https://us06web.zoom.us/j/85195437474?pwd=9Zjat03ujh4JaxQRueGvRyDVMtZpQW.1Peer Group for Adults
Thursday 19th June 19:00 - 20:00 Zoom: https://us06web.zoom.us/j/87330351034?pwd=WJJC8OiGkRWbSISFF8XXUf5bFUPzGv.1Rett Gents
Thursday 19th June 20:00 - 21:00 Teams: https://teams.microsoft.com/meet/33854098519?p=mQFKnFo3nBncXhvMxJNorth West / North Wales Out & About Group
Saturday 21st June 10:00-12:00 Delamere Forest Registration Deadline: 3pm on Thursday 19th June Registration Form: https://forms.office.com/e/HdsmeD6zVzMidlands Out & About Group
Saturday 21st June 13:00-15:00 Mary Stevens Park Registration Deadline: 3pm on Thursday 19th June Registration Form: https://forms.office.com/e/Ft5j2QUpYzHampshire Out & About Group
Sunday 22nd June 10:00-12:00 Royal Victoria Park, Southampton Registration Deadline: 3pm on Thursday 19th June Registration Form: https://forms.office.com/e/79CcH22yMS--
You can find links to all our events here too:
linktr.ee/rettukAny questions please get in touch!
We hope you have a lovely week
#RettUK #RettSyndrome #WeeklySchedule #PeerSession #OnlinePeerSession #PeerGroupForAdults #RettGents #DiscussionGroup #OutandAboutGroup #NorthWest #NorthWales #DelamereForset #Midlands #MaryStevensPark #Hampshire #RoyalVictoriaPark
Happy Father’s Day to everyone in our Rett UK family Wishing every dad, granddad, carer/guardian and anyone else who celebrates it, a very Happy Father's Day from all of us here at Rett UK
We hope you’re all having a lovely day and are able to spend time with your family and loved ones
To celebrate, we'd love for you to comment below your messages of love, support and appreciation for all your loved ones
#RettUK #RettSyndrome #FathersDay #Celebrate #Dad
Calling all families living in Central Scotland Are you looking for a fun day out and a chance to meet other families with Rett syndrome in your area this weekend?
Join us for a fun day open to all the family! Our CommEd Support team member Tracey will be on hand to facilitate the event and ensure everyone has a lovely time together
Saturday 14th June 11:00-13:00 The Kelpies at The HelixIf you’re interested in joining, simply complete our registration form here:
https://forms.office.com/e/4YhkhWD1d9Mums, dads, other carers, siblings, children and adults with Rett syndrome are all welcome! These activities have been chosen to suit any age, from toddlers to adults, and offer accessible venues, toilets and parking
Please note, the sign-up form closes at 15:00 (3pm) on Thursday 12th June Any questions please let us know!
We hope to see you there
#RettUK #RettSyndrome #OutandAboutGroups #Spring #FamilyActivities #CentralScotland #Scotland #Kelpies
Latest tweets
Follow us on X for the latest news and updates on Rett syndrome
#SupportTodayHopeForTomorrow
@RettUKTestimonials
Becky Jenner
Gwenda Dimmock
Rett UK are a lifeline to us Rett Families. I don’t know what I would have done without them.
Elizabeth Allen
Elizabeth Allen
Caring and sharing. Informative and supportive. Great stuff for all those families. X
Joanna Tomlin
Exceptional Support!
Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I’m not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can’t thank them enough!
Becky Jenner
Gwenda Dimmock
Rett UK are a lifeline to us Rett Families. I don’t know what I would have done without them.
Elizabeth Allen
Elizabeth Allen
Caring and sharing. Informative and supportive. Great stuff for all those families. X
Joanna Tomlin
Exceptional Support!
Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I’m not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can’t thank them enough!
Becky Jenner
Gwenda Dimmock
Rett UK are a lifeline to us Rett Families. I don’t know what I would have done without them.