🎉 Congratulations to Annette, Renata and Christine who have successfully completed their sponsored skydive 🎉
After initially being postponed due to the weather, the group were finally able to take the leap 🪂 Between them, they have raised around £2,000 for Rett UK and made a lot of people aware of Rett syndrome!
Annette supports 9 year old Niamh, who has Rett syndrome and who inspired them to embark on this challenge! (scroll to see a lovely picture of the two of them together 🥰)
Here's what Annette had to say about the experience:
"I've been working with Niamh for 5 years now and I know her family are very grateful to Rett UK for all the support they receive.
I'm glad that our fundraising will help a little towards all that you do. We are so happy that Rett UK will benefit from all the donations and be able to continue their support to families."
This month marks October Awareness, an important opportunity to help us spread awareness of Rett syndrome! It’s also a wonderful chance to take on your own fundraising projects to raise donations for Rett UK and allow us to continue providing support to families across the UK 🥰
📣 Make Some Noise About Rett Syndrome 📣
Take a look through this posts to see some ideas for your own fundraisers! Or if you’ve got any other ideas we’d love you to get creative 🤩
If you want to get any fundraising supplies or want to discuss support with your projects during this month, please email:
📧 info@rettuk.org
🍻 Calling all dads and other male relatives of people with Rett syndrome...Beer and Banter is back TONIGHT🍻
🗓️ Thursday 3rd October
⏰ 20:00 - 21:00
🖥 Microsoft Teams (just click on the link below 🔗)
Join Brett, dad of Charlotte, and Steve, dad of Lydia, for an informal Zoom meeting where you can discuss your experiences and stories, and get support in a fun setting!
If you’re interested, you can join the call directly through the Teams link ⬇️
Huge thanks and appreciation to John and Lucy Wyatt, who recently held ‘Jade’s Annual Golf Day’, in loving memory of John’s daughter Jade 💜
A fantastic turnout in beautiful sunshine ☀️
With almost 50 friends and golfers ⛳️🏌️♀️ attending and giving so generously - raising £3,000 for Rett UK.
Special thanks to Bobby Arthey and Gary Pooley for their wonderful support and help.
🚨 Will you be joining our brand new Modelling session this Thursday? 🚨
Don’t forget that this week marks our first Modelling session! Join our communication team for an interactive session to discuss and learn about modelling with a range of devices and systems (including TD Snap, Super Core and paper-based resources) 💬
🗓 Thursday 3rd October
⏰ 12:00 - 13:00
🔗 On Zoom (link below)
🚨 Please note: these are replacing our Communication Drop-In sessions which will now only take place on the 3rd Tuesday of the month 🚨
Each month there will be a different topic and the theme for the first session is Expressing Opinions 💭
Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I’m not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can’t thank them enough!