📝 Rett Insights #5: Constipation 📝

Constipation is one of the most common gastro issues for individuals with Rett syndrome, with about 85% experiencing it at some point in their lives.

Read this Insight to learn more about constipation and different strategies you can employ to avoid this from happening. As always, we're also highlighting key resources to support this symptom 💜

🔗 You can access all the links to learn more by scanning the QR codes or clicking the links below:
➡️ https://www.rettuk.org/Constipation
➡️ https://www.rettuk.org/EricConstipation
➡️ https://www.jellydrops.com/

Be sure to keep an eye on our social media channels each week to find a new Rett Insight 👀

#RettUK #RettSyndrome #RettInsights #Constipation #FamilySupport

👥💬 How to be an Effective Communication Partner: Online Training Sessions 👥💬

Join us for our next round of Communication Partner Training sessions 📢

🗓️ Saturday 20th September; 09:00 - 13:00 AND Saturday 18th October; 09:00 - 13:00
💻 Online (links to join the sessions will be sent via email)
🔗 Register for your place now: https://forms.office.com/e/emKSPCbf6U

Effective communication isn’t all about how the person with Rett syndrome (or other complex communication needs) communicates. It isn’t all about eye gaze technology either. It’s about how you as a Communication Partner think and act, and the things you can do without any technology!

Over two sessions, two members of our Communication & Education team will take you through ideas and activities for developing your own skills as a Communication Partner. This will include things like modelling and partner-assisted scanning, and techniques you can adapt to suit the person with Rett syndrome as their symptoms fluctuate day to day.

📚 A selection of low-tech resources will be posted to you in the week before the first session (or sent via email to non-UK attendees).

This session is suitable for parents, family and carers of, and those who professionally support people with Rett syndrome of all ages, from toddler to adult, and is a pre-requisite for any family considering joining our device loan programme.

📜 Professionals who support someone with Rett syndrome as part of their caseload are also welcome (we can provide a certificate of attendance for CPD purposes upon completion of session 2).

🚨 Please note you must attend BOTH sessions of this training. You cannot attend one without the other 🚨

If you would like to join this training, all you need to do is click on the link below to complete the registration form ⬇️
🔗 https://forms.office.com/e/emKSPCbf6U

🚨 Registration closes at 17:00 on Wednesday 10th September 🚨

Please don't hesitate to get in touch if you have any questions 💜💚

#RettUK #RettSyndrome #CommunicationPartnerTraining #EffectiveCommunication #Training

💻 Don't Miss the Free Webinar by Bumble Bee Physio Next Week 💻

'Move to Thrive’ will take a look at increasing activity levels in children at risk of sedentary lifestyles. It will focus on both infants developing their skills from birth or at risk of motor delay, and older children with more severe motor impairment, and typically requiring postural care approaches.

🗓 Tuesday 15th July
⏰ 09:00
🔗 Register via the link below and more information about joining the session will be sent via email

This special webinar will be hosted by Jenx with guest host Hannah Spink, specialist PT and Clinical Director of Bumble Bee Physio 🐝

Read more about the webinar and sign-up for your free space via the link below:
🔗 https://attoday.co.uk/webinar-for-hcps-will-address-increasing-activity-levels-in-children-at-risk-of-sedentary-lifestyles/

#RettUK #RettSyndrome #BumbleBeePhysio #Webinar

🚲 Dennis's Epic Cycling Challenge Update 🚲

As you know, Dennis Fundraising has been on an incredible fundraising challenge for the past month, aiming to cycle from London to Barcelona AND back! That's an incredible 2,400 miles in total!

Well, we're delighted that at the end of last week Dennis safely reached the halfway mark and made it all the way to the Sagrada Familia in Barcelona 🥳 🥳

Along the way he's been battling extreme temperatures between 37-42 degrees! And now after a short rest and dip in the sea, Dennis has embarked on the return journey, this time following the Mediterranean Sea ☀️🌊

Scroll through this post to see some photos from his journey (courtesy of his Facebook page Dennis Fundraising) 📸

We'd love you to join us in wishing Dennis good luck and a safe journey back home in the comments below 🍀💬

🚨 Dennis is embarking on this challenge to raise money for Rett UK and the Friends of CME Trust! You can read more about his story, the charities and donate to his fundraiser via the link below:
🔗 www.stewardship.org.uk/pages/barcelonabacktolondon

Good luck Dennis and thank you again for taking on this challenge for Rett UK 💜💚

#RettUK #RettSyndrome #Challenge #Fundraising #Cycling #LondontoBarcelona #StPauls #SagradaFamilia #London #Barcelona

You may have noticed an issue with our website which has been routing visitors using an Android device to the site of a foreign website. The cause of the issue has been identified and is being corrected. The problem is with Google links rather than the Rett UK servers. Our website, and the data within the website, remains secure. We apologise if this has caused any concern or inconvenience.