Will you be joining our next "Communication Partner Drop-In Clinic"? 👥
A chance for anyone supporting an individual with Rett syndrome to get their communication questions, big or small, answered!
The next session is taking place:
🗓 Tuesday 21st May
⏰ 20:00 - 21:00
🔗 On Zoom (link below)
If you support someone with Rett syndrome and have any questions about their communication – big or small – this is an opportunity for you to get answers. It's also a time to share any communication highs/lows.
No need to register or stay for the full time, just drop in during the clinic hour and ask our RCCs for help.
It doesn’t matter what stage of communication the person with Rett syndrome is at – there may be nothing in place yet or you may be a bit further on and feeling stuck. No question is too silly or scary!
💜 The 9th Rett World Congress is taking place in Australia this October 💜
After a few years break, we're delighted that the Rett World Congress is back for 2024 and happening on the Gold Coast ☀️ 🌊 Organised by Rett Syndrome Association of Australia Inc.- RSAA, this will be a jam-packed few days exploring the most up-to-date information on all aspects of RETT!
There will be seminars and talks by world renowned experts in Rett syndrome, presenting the latest in research, clinical innovations & drugs. And of course, plenty of social events, support, entertainment and much more!
This is a perfect chance to learn more about Rett syndrome as well as meet other families from all around the world 🌏
Here's an interesting written by Patricia Inácio, PhD which explores a recent study into how probiotics can help ease dystonia 📄
Specifically, the probiotic Lactobacillus plantarum PS128 was found to ease involuntary leg muscle contractions, known as dystonia, in Rett syndrome patients according to a recent pilot study.
Calling all adults with Rett syndrome! We'd love you to join our next "Peer Group for Adults" 👥
An opportunity for adults with Rett syndrome to come together, connect, have fun and communicate!
The next session is taking place:
🗓 Thursday 16th May
⏰ 19:00 - 20:00
🔗 On Zoom (link below)
These sessions will be facilitated by our RCCs, with activities and topics steered by the interests of the group!
There is no need for a formal communication system to be in place, any form of communication can be used (e.g. no tech, paper-based, eye gaze device). And there is absolutely no pressure or requirement to speak up - you can just come along and listen.
This is open to anybody over the age of 18 with Rett syndrome. Each person with Rett syndrome needs to be accompanied by a supporter.
Don't miss our next "Online Peer Session" 👥
An opportunity for people with Rett syndrome of any age, to come together, connect, have fun and communicate!
The next session is taking place:
🗓 Monday 13th May
⏰ 13:30 - 14:30
🔗 On Zoom (link below)
These sessions will be facilitated by our RCCs, with activities and topics steered by the interests of the group!
There is no need for a formal communication system to be in place, any form of communication can be used (e.g. no tech, paper-based, eye gaze device). And there is absolutely no pressure or requirement to speak up - you can just come along and listen.
This is open to people with Rett syndrome of ALL ages, so you could even join in from school. Each person with Rett syndrome needs to be accompanied by a supporter.
Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I’m not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can’t thank them enough!
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