Minis Peer Session

👥 Don't forget our next Modelling Session is happening tomorrow...will you be there? 👥

This is an opportunity to meet with our Communication Team through an interactive, online session! Focussing on different topics and learning more about modelling in both TD Snap, Super Core and paper based communication resources (as well as any other system you may be using) 💻

The next session is taking place TOMORROW:
🗓 Tuesday 1st July
⏰ 12:00 - 13:00
🔗 On Zoom: https://us06web.zoom.us/j/81218346293?pwd=bc7IfnHvQy4eUw7dgutiKdhMg9aqJq.1

Each month there will be a different topic and during the session we will discuss where you will find the words in both TD Snap and Super Core as well as any other system you may be using (e.g. paper based communication resources).

📢 These are interactive sessions so participants should expect to join in with the discussions 📢

To join the session, simply click on the zoom link below ⬇️
🔗 https://us06web.zoom.us/j/81218346293?pwd=bc7IfnHvQy4eUw7dgutiKdhMg9aqJq.1

Any questions please get in touch 💜

#RettUK #RettSyndrome #ModellingSessions #Modelling #Communication

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Rett UK4 days ago

🏃 Don't Miss Your Chance to Run in the Great North Run 2025 for #TeamRett 🏃

📅 Race Date: Sunday 7th September 2025
📍 Location: Newcastle-Gateshead-South Shields
💸 Registration Fee: £10
💰 Minimum Fundraising Target: £400
📝 Registration Deadline: 7th July, 10:00 BST
🔗 Registration Link: https://forms.office.com/e/Uux4NgEv8k

The Great North Run, the world’s largest half-marathon, returns to Newcastle in September 2025, and we’re excited to be part of it once again!

Known for its vibrant atmosphere, lively entertainment, and the unforgettable 13.1 mile journey filled with Geordie spirit 🤩

🚨 With only TWO spaces left in our team...will you take on the challenge? Sign up by Monday 7th July at 10am to secure your spot 🚨

Click here to register for your place:
🔗 https://forms.office.com/e/Uux4NgEv8k

🚨 Be sure to share this with anyone you know that could be interested in taking part in this challenge all while raising money for a great cause 🚨

Any questions please don't hesitate to get in touch 💜💚

#RettUK #RettSyndrome #GreatNorthRun #GNR2025 #HalfMarathon #running #challenge #RunForRett #TeamRett #GNR #greatnorthrun2025 #charity #charityevent

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Rett UK4 days ago

📝 Rett Insights #4: Bruxism 📝

It's time to take a look at our next Rett Insight, exploring Bruxism, a common and distressing symptom of Rett syndrome 💜

Read this Insight to learn more about what bruxism is, the causes and triggers, and most importantly, ways to help manage and alleviate the problem. As always, we're also highlighting key resources to support this symptom.

🔗 You can access all the links to learn more by scanning the QR code or clicking the link below:
➡️ https://www.rettuk.org/NHSBruxism

Be sure to keep an eye on our social media channels each week to see a new Rett Insight 👀

#RettUK #RettSyndrome #RettInsights #Bruxism #TeethGrinding #FamilySupport

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Rett UK5 days ago

Will you be joining our next MINI Peer Session? 🧸

Don't miss this session designed for children aged 0-7, with age compatible songs, books and chat!

Join us on:
🗓 Saturday 28th June
⏰ 09:00 - 09:45
🔗 On Zoom: https://us06web.zoom.us/j/83644019173?pwd=IXDAoLBp0mUfbAOhq5blSsaJJuYqk2.1

This social group will be facilitated by our CommEd Support Team and is aimed at children aged 0-7 with Rett syndrome and their Communication Partners!

These sessions will be structured for the younger age group with age compatible songs, books and chat. No need to book, just turn up!

To join our session on Saturday (28.06), simply click on the link below ⬇️
🔗 https://us06web.zoom.us/j/83644019173?pwd=IXDAoLBp0mUfbAOhq5blSsaJJuYqk2.1

These sessions run monthly so if you can't attend this group the next session takes place on Saturday 26th July at 09:00.

If you have any questions or issues please get in touch 💜💚

#RettUK #RettSyndrome #MiniPeerGroup

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Rett UK1 week ago

📢 Calling all families living in Nottinghamshire 📢

Are you looking for a fun day out and a chance to meet other families with Rett syndrome in your area this weekend? 🌤️ 🎉

Join us for a fun day open to all the family! Our CommEd Support team members Lisa and Petra will be on hand to facilitate the event and ensure everyone has a lovely time together 💚

🗓️ Saturday 28th June
⏰ 13:30-15:30
📍 Rufford Abbey Country Park

If you’re interested in joining, simply complete our registration form via the link below ⬇️
🔗 https://forms.office.com/e/6fDJuZy8cs

Mums, dads, other carers, siblings, children and adults with Rett syndrome are all welcome! These activities have been chosen to suit any age, from toddlers to adults, and offer accessible venues, toilets and parking 💜

🚨 Please note, the sign-up form closes at 3pm on Thursday 26th June 🚨

Any questions please let us know!
We hope to see you there 🥰

#RettUK #RettSyndrome #OutandAboutGroups #Summer #FamilyActivities #Nottinghamshire #RuffordAbbeyCountryPark