🚨 Earlier this week, we joined over 40 organisations in calling for the Mental Health Bill to be strengthened to better support people with a communication disability, difficulty, or difference.

▶️ Our briefing sets out why this matters: https://www.rcslt.org/wp-content/uploads/2025/01/RCSLT-briefing-Mental-Health-Bill-Committee-Stage-Briefing-January-2025.pdf

Calling all adults with Rett syndrome! We'd love you to join our first 2025 "Peer Group for Adults" 👥

Join us for an opportunity for adults with Rett syndrome to come together, connect, have fun and communicate!

This session is taking place:
🗓 Thursday 16th January
⏰ 19:00 - 20:00
🔗 On Zoom: https://us06web.zoom.us/j/87330351034?pwd=WJJC8OiGkRWbSISFF8XXUf5bFUPzGv.1

These sessions will be facilitated by our RCCs, with activities and topics steered by the interests of the group!

There is no need for a formal communication system to be in place, any form of communication can be used (e.g. no tech, paper-based, eye gaze device). And there is absolutely no pressure or requirement to speak up - you can just come along and listen.

This is open to anybody over the age of 18 with Rett syndrome. Each person with Rett syndrome needs to be accompanied by a supporter.

To join our session THIS THURSDAY (16.01), simply click on the following link:
🔗 https://us06web.zoom.us/j/87330351034?pwd=WJJC8OiGkRWbSISFF8XXUf5bFUPzGv.1

If you have any questions or issues please get in touch 💜💚

#RettUK #RettSyndrome #PeerGroupForAdults

Are you a Speech and Language Therapist or other professional who supports communication? We Need Your Help 📢

Can you take a moment to complete a short survey as part of our new project focusing on ‘Communication Support for People with Rett Syndrome in the UK’? 📝

If you live in the UK, you could answer these questions and more in our survey:
➡️ Do you work with children or adults with Rett syndrome?
➡️ What shapes your practice?
➡️ Where do you find support and guidance?
➡️ Have the Rett Syndrome Communication Guidelines helped you or have you not heard of them?
➡️ Have you participated in any of Rett UK’s communication activities or not felt they were for you?
➡️ What works and what would you change?

This project is led by Dr Gill Townend, lecturer at the University of Reading, research lead here at Rett UK and lead author of the Rett Syndrome Communication Guidelines.

Full details can be accessed via the link below or by scanning the QR code in the infographic. The survey can be completed on your computer or mobile device 🖥 🔗 https://redcap.link/5mpdfxgj

🚨The closing date for this survey is: Monday 20th January 2025.

If you have any queries, please contact: g.townend@reading.ac.uk

#RettUK #RettSyndrome #UniversityofReading #Survey #CommunicationSupport #CommunicationGuidelines

🗓️ What's Happening at Rett UK in January - Monthly Schedule 🗓️

Happy New Year to everyone 🥳 We hope you've had a peaceful start to the year and are ready to take on new challenges in 2025! We're back and ready for a year full of events and support, so let's take a look at what we've got coming up in January 👀

🚨 We’ve made some changes to our Communication Events schedule for 2025! Be sure to take not of the different sessions we run as they repeat the same weeks each month (and using the same zoom links too) 🚨

More information on each event will be posted accordingly. But for now, be sure to mark these events in your calendar so you don't miss anything 🗓️

You can find the access links to all our events via our Linktree (in bio) as well as any additional support, fundraising and resources links!
🔗 https://linktr.ee/rettuk

Got any questions, let us know below 💜 💚

#RettUK #RettSyndrome #MonthlyCalendar #WhatsHappeningAtRettUK #JanuarySchedule