Support today, hope for tomorrow
Support helpline: 01582 798911 other ways to get in contact


Rett UK is incredibly lucky to have the support of many families and friends . . . people who know first hand the devastation of receiving a diagnosis of Rett syndrome and those living with the everyday challenges it presents. But there is only so much they can do.. we need your help to keep raising the profile of Rett syndrome in your community and engaging with new people to help more families today and in the comp 2

Our supporters are hugely valued by our families .. without you their calls for help, information and advice would go unanswered. The feelings of isolation, frustration and despair at what they are having to deal with on a daily basis becomes overwhelming. Many families just can’t cope and relationships inevitably suffer.

But you can help us change that and make sure life becomes manageable and the person they are caring for has the best chance of living a full and happy life.

Have a look at our fundraising page to see how you can get involvedbest-guide-1 and read some of our  personal stories from people who are living with the disorder and from those that were inspired to help them.

Rett UK will support you every step of the way; together we are giving a brighter future to those affected by Rett syndrome. Could you be a Rett Champion for our families?

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rare disease day photo Leah


For the past 3 months, I’ve had the pleasure of being able to write this series of blogs.  Sadly, this will be the last one I write, and I would […]

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Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I’m not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can’t thank them enough!

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