Support today, hope for tomorrow
Support helpline: 01582 798911 other ways to get in contact

Health Passport

Fed up rett-health-passport-social-mediawith repeating yourself to health care professionals? Need to keep track of medication and all the treatments your daughter/son has had, in an easy to update format? As a PDF you can write into, you can keep the copy clean and up to date very easily.
Rett UK are pleased to bring you a new resource which we think you will find really helpful for all of this, including visits to the dentist. The Rett UK Health Passport keeps all that information in one place for you to print and keep in folder, or share electronically. Take the information with you if they have an unplanned emergency admission; the Grab Sheet, works really well as an overview but then if your daughter/son is admitted, the full file will be more appropriate. Useful too for outpatients appointments. We have included some pointers about Rett syndrome which are often overlooked or not understood, plus where to go for more information.


Download your Rett UK Health Passport

If you don’t have access to a printer, or would like us to print it out for you once you have completed it, please just ask and we will do it for you.
As always we welcome your feedback. Please email 

Social Hub

Everything that is going on at Rett UK.

rare disease day photo Leah


For the past 3 months, I’ve had the pleasure of being able to write this series of blogs.  Sadly, this will be the last one I write, and I would […]

Read more


Follow us


Rett UK are a lifeline to us Rett Families. I don’t know what I would have done without them.

Read story

Sign up

Already have an account? Sign in

Sign in

Not a Member? Sign up for free today

Volunteer Sign in