Support today, hope for tomorrow
Support helpline: 01582 798911 other ways to get in contact

Resources

Access to the right information can be life changing for people with Rett syndrome; early diagnosis, specialist input to the care and management of symptoms associated with Rett syndrome lead to better longer term outcomes. At Rett UK we strive to bring you up to date and accessible information about all aspects of the disorder. We have some excellent resources which we have developed ourselves calling on the experience and knowledge of our key medical advisers as well as the experience of parents themselves. We also make the most of other resources that have been developed elsewhere that we think will be useful to you. If you cannot find the answer to what you are looking for here or have a query then please call our support helpline.

Social Hub

Everything that is going on at Rett UK.

susanne and mia

Blog

Guest blog: Many thanks to Susanne Crosby, whose daughter Mia has Rett syndrome for letting us share her blog originally written for Scope after Susanne was involved with their Face […]

Read more

Tweets

Follow us

Testimonials

Rett UK are a lifeline to us Rett Families. I don’t know what I would have done without them.

Read story

Sign up

Already have an account? Sign in

Sign in

Not a Member? Sign up for free today