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Support helpline: 01582 798911 other ways to get in contact


Access to the right information can be life changing for people with Rett syndrome; early diagnosis, specialist input to the care and management of symptoms associated with Rett syndrome lead to better longer term outcomes. At Rett UK we strive to bring you up to date and accessible information about all aspects of the disorder. We have some excellent resources which we have developed ourselves calling on the experience and knowledge of our key medical advisers as well as the experience of parents themselves. We also make the most of other resources that have been developed elsewhere that we think will be useful to you. If you cannot find the answer to what you are looking for here or have a query then please call our support helpline.

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rare disease day photo Leah


For the past 3 months, I’ve had the pleasure of being able to write this series of blogs.  Sadly, this will be the last one I write, and I would […]

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