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Access to the right information can be life changing for people with Rett syndrome; early diagnosis, specialist input to the care and management of symptoms associated with Rett syndrome lead to better longer term outcomes. At Rett UK we strive to bring you up to date and accessible information about all aspects of the disorder. We have some excellent resources which we have developed ourselves calling on the experience and knowledge of our key medical advisers as well as the experience of parents themselves. We also make the most of other resources that have been developed elsewhere that we think will be useful to you. If you cannot find the answer to what you are looking for here or have a query then please call our support helpline.

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susanne and mia


Guest blog: Many thanks to Susanne Crosby, whose daughter Mia has Rett syndrome for letting us share her blog originally written for Scope after Susanne was involved with their Face […]

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Caring and sharing. Informative and supportive. Great stuff for all those families. X

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