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Latest Research News

Here we aim to bring you research news from around the world so you are always kept up to date.

Bridging the Divide – developing a mini gene, Dr Adrian Bird October 2017

Update on Trofinetide – Phase 3 Clinical Trials  October 2017

First UK clinical trial for Rett syndrome in the UK announced – Sarizotan, Mar 2017

Development_of_the_Tailored_Rett_Intervention_and_Assessment Longitudinal (TRIAL) Database Dr Santosh 2017

Ketamine clinical trials – funded by Rett Syndrome Research Trust (April 2015)

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rare disease day photo Leah


For the past 3 months, I’ve had the pleasure of being able to write this series of blogs.  Sadly, this will be the last one I write, and I would […]

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