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Family Services Evaluation 2016

In an increasingly competitive funding environment it is more important than ever that we show our funders the impact of our work; not just in  reporting on what we have […]

InterRett News letter now out!

If you are not familiar with InteRett then it is worth having a look at their web site. Some great resources which we have featured on our web  site too […]

Run for Retts!

We loved this story shared by Kody Scott Fairfield and we think it is the first horse we know named for Rett syndrome What’s in a name?  It can be […]

Geo Goes For The Chop!

What better excuse is needed to get your hair cut after three years than doing it for charity! We are very grateful to George Steven, good friend to Lee and […]

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susanne and mia

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Guest blog: Many thanks to Susanne Crosby, whose daughter Mia has Rett syndrome for letting us share her blog originally written for Scope after Susanne was involved with their Face […]

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Caring and sharing. Informative and supportive. Great stuff for all those families. X

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