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Legal & Privacy

Legal Disclaimer

Although great care has been taken in the compilation and preparation of this website and the information contained within to ensure accuracy, Rett UK cannot accept responsibility for any errors or omissions. Any medical information is provided for education / information purposes – you should obtain further information from you medical practitioner.

Medical Information

There are pages on the Rett UK website that may contain references to medical research and medical advice. Rett UK will do all it can to ensure that such advice is peer reviewed by our scientific advisors and is accurate. In every circumstance it is ESSENTIAL that users always contact their clinician or GP before embarking on any course of treatment or therapy.


Rett UK takes the handling and storage of personal data very seriously. We are registered with the Information Commissioner’s Office and our registration number is Z273623X. This link will take you to our registration.

You can also read Rett-UK-Privacy-Statement  here.

Any comments or complaints about use of personal information held by Rett UK may be made by any means through the ‘contact us‘ page.

Rett UK website contains links to external websites and other sites may link to Rett UK, but in no way does this indicate our endorsement of those sites or their content.

We encourage all visitors to read the privacy statements of each website that collects personal information.


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rare disease day photo Leah


For the past 3 months, I’ve had the pleasure of being able to write this series of blogs.  Sadly, this will be the last one I write, and I would […]

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Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I’m not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can’t thank them enough!

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