Support today, hope for tomorrow
Support helpline: 01582 798911 other ways to get in contact

Regional Roadshows

Niamh and familyWe like to get out and about to meet as many of you in the Rett community as we can. That’s why we hold free regional roadshows around the country.

A big part of our roadshows is getting families together so you can share your experiences, pass on tips and give each other support. It’s wonderful seeing friendships forged and information and advice being passed around.

Informative presentations

Our roadshows are a great opportunity to pick up new information from our panel of experts. Throughout the day we run 45-minute presentations on a range of Rett-related topics such as breathing issues, communication and education, epilepsy, adult living options and music therapy.

1-2-1 sessions

Book a 1-2-1 session with our Rett UK experts and you’ll have chance to try out eye gaze technology, learn about music therapy, discover oral hygiene tips for those who are tube fed, have a communication strategy session – and lots more.

Help for siblings

We hold two training workshops dedicated to non-Rett siblings. One workshop is aimed at parents to help support their relationship with their non-Rett child/children. The other is for the siblings themselves, allowing them their own, safe space to explore their feelings.

Food and fun

While parents are finding out more about Rett syndrome, we have lots to keep people with Rett as well as their siblings occupied. For young ones, there are activities like mini-zoo visits, face painting, indoor and outdoor games and arts and crafts. For the older ones, it’s all about pampering with foot spas, massage and nail painting. Our professional staff and volunteers will be there to ensure everyone is safe and well looked after.

As for food, everyone can tuck into a free buffet lunch and there are always plenty of drinks, cakes and biscuits available throughout the day, too.

* To find out about the next Regional Roadshow, check out Events 

 

Social Hub

Everything that is going on at Rett UK.

rare disease day photo Leah

Blog

For the past 3 months, I’ve had the pleasure of being able to write this series of blogs.  Sadly, this will be the last one I write, and I would […]

Read more

Tweets

Follow us

Testimonials

Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I’m not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can’t thank them enough!

Sign up

Already have an account? Sign in

Sign in

Not a Member? Sign up for free today

Volunteer Sign in