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Support helpline: 01582 798911 other ways to get in contact

Family Contact Network

Chatting to someone who knows exactly how you’re feeling and understands the daily challenges that Rett syndrome presents can really help. With our Family Contact Network supporters you’re only a phone call away from another parent who you can talk to.

Our network is made up of parents who’ll provide a listening ear and friendly support. They can share their experiences, whether that’s about Rett syndrome in general or a specific area such as epilepsy, scoliosis or feeding difficulties.

All our network parents have completed appropriate safeguarding training and listening skills training. Rest assured that the calls are completely confidential, unless our they feel there is a safeguarding concern.

* If you’d like to talk to one of our Family  Contact Network supporters, we can put you in touch. Contact our Support Helpline on 01582 798911. Or email

We are currently recruiting and training new Family Contact Network supporters with training dates coming up in Glasgow 19th May and Belfast 23rd June 2018. If you would like to find out more about this role, please email



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For the past 3 months, I’ve had the pleasure of being able to write this series of blogs.  Sadly, this will be the last one I write, and I would […]

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Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I’m not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can’t thank them enough!

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