Support today, hope for tomorrow
Support helpline: 01582 798911 other ways to get in contact


Membership of Rett UK is free for UK families/carers and individuals.  Membership is free for people with Rett syndrome regardless of where they live.

Joining Rett UK ensures you get our quarterly magazine Rett News, (shortly to be available via email and regular email bulletin updates too), The Rett UK Family Companion and the updates as they are issued, invites and priority booking at the regional events and Family Weekend. In addition, downloadable and printed information that is only available to members within the Membership section of the web site.

As a member you have an important voice about the services we provide. We  invite you to take part in surveys, consultations and an Annual General Meeting. Your opinion matters to us. This is your charity and the services we provide are designed to meet your needs in relation to your family caring for someone with Rett syndrome. Please join us today and help us shape the services that matter to you.

There is no membership joining fee or annual subscription, unless of course you would like to make a regular donation. Sign up today here or contact us in the office on 01582 798910, email


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susanne and mia


Guest blog: Many thanks to Susanne Crosby, whose daughter Mia has Rett syndrome for letting us share her blog originally written for Scope after Susanne was involved with their Face […]

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Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I’m not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can’t thank them enough!

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