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About Us

Rett UK is the only UK charity which provides professional support to people living with Rett syndrome across the UK.

Rett UK was founded in 1985 round a kitchen table by Yvonne Milne MBE. Since then we have grown to be the leading provider of information to not only families but also medical professionals new to the world of Rett syndrome.

Our purpose…

Rett UK is a national charity dedicated to supporting and empowering people with Rett syndrome and their families.

 Our strategic aims are to …

  • provide professional family-support services, activities and events at a local, regional and national level
  • educate health, social care and education professionals about Rett syndrome to enable quicker diagnosis and improved standards of care throughout the UK
  • advocate for people with Rett syndrome to be given the support and resources needed to be active communicators
  • promote, support and encourage research into new therapies and treatments for Rett syndrome

Our vision…

That everyone with Rett syndrome is given every possible opportunity to achieve their individual potential so that they may live their life to the full.

We are a small team working on a national level. We receive NO government funding and rely entirely on donations and grants to fund our work.

Download our Rett syndrome general information leaflet to learn more about our work and how you can help.

Rett UK 

Rett UK Accounts 2016-2017

Rett UK Accounts 2015-16

Rett UK Annual Review 2015

Rett UK Accounts 2014 -2015

Rett UK Annual Report 2013-14

Rett UK Annual Report 2012-13

Rett UK Articles and Memorandum

Social Hub

Everything that is going on at Rett UK.

susanne and mia

Blog

Guest blog: Many thanks to Susanne Crosby, whose daughter Mia has Rett syndrome for letting us share her blog originally written for Scope after Susanne was involved with their Face […]

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Testimonials

Rett UK are a lifeline to us Rett Families. I don’t know what I would have done without them.

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