“With the support of Rett UK, we are currently developing these clinical guidelines, that will provide a summary of accepted best practice to help families, carers, and other professionals”.
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The Development and Evaluation of Management Guidelines in the Areas of Nutrition and Growth, and Fracture Prevention for Clinical Care of Persons with Rett Syndrome
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Dr Helen Leonard, Clinical Associate at the Telethon Institute for Child Health Research in Perth, Australia is leading this research project. The aim is to develop clinical management guidelines to support clinical care. The guidelines will be be based on a composite of evidence together with the researchers’ own observational data. The guidelines will ensure that clinicians have the best possible information on best practice.
Click here for further information from Dr Helen Leonard
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