The British Isles Rett Syndrome Survey (BIRSS) was established by Dr Alison Kerr at Glasgow University in 1982. Since 2005, it has been based at Cardiff University under the supervision of Professor Angus Clarke and coordinated by Dr Ania Jaworska. Funded by Rett UK the main aim is to monitor the health of people with Rett syndrome to enhance the understanding of the natural history of the disorder throughout lifespan. This will then enable other research studies to be targeted.

Click here for Angus and Ania's latest update.