<img src=“RettUKlogo_website.jpg” alt=“Rett syndrome symptoms help cure”>
SUPPORT HELPLINE: 01582 798911


Although great care has been taken in the compilation and preparation of this website and the information contained within to ensure accuracy, Rett Syndrome Association UK cannot accept responsibility for any errors or omissions. Any medical information is provided for education / information purposes - you should obtain further information from you medical practitioner. 



This site has been provided free by Egelnick & Webb and James Home and is managed by Rett UK, a registered charity

(number: 1137820).

This statement applies only to Rett UK website at www.rettuk.org

We are committed to provision of a safe and secure website. This privacy policy aims to tell you what kind of information we may gather about you when you use this website, how we use that information, and what choices you have about how much information you provide to us and your ability to change or correct the information you give us.

What information we collect:
You can access information on this website without having to provide any personal details. Rett UK monitors the numbers of visitors to this website, which simply tells us how many people access this service. Information about the number of visitors is completely anonymous as it does not include details of names, email addresses or any personally identifiable information.

Personal identifiable information
Information will only be collected by Rett UK when you knowingly provide this. Access to parts of the website (including the forum, and the document library) requires that you complete a registration form, which does include personal information,

For Example:
Telephone Number
Email Address

This information is handled in compliance with Rett UK’s Data Protection Policy and the 1988 Data Protection Act. Where stated, Rett UK may use this personal information to contact you in the future about forthcoming training, events, newsletters and new resources. Rett UK will not disclose personal details to a third party for use other than specified, with the exception of any breach of the terms of use of this website.

Rett UK acknowledges that the nature of the discussion forums on this website is such that there is a responsibility to monitor the content of contributions, and promote safe use, as described in the Terms and Conditions for users of the website.

Changes or corrections to the personal information submitted by people who have registered with the website can be made by accessing your account the website.

Any comments or complaints about use of personal information held by Rett UK may be made by any means through the ‘contact us' page.

Rett UK website contains links to external websites and other sites may link to Rett UK, but in no way does this indicate our endorsement of those sites or their content.

We encourage all visitors to read the privacy statements of each website that collects personal information.

Medical Information
There are pages on the Rett UK website that may contain references to medical research and medical advice. Rett UK will do all it can to ensure that such advice is peer reviewed by our scientific advisors and is accurate. In every circumstance it is ESSENTIAL that users always contact their clinician or GP before embarking on any course of treatment or therapy.