<img src=“RettUKlogo_website.jpg” alt=“Rett syndrome symptoms help cure”>
SUPPORT HELPLINE: 01582 798911

Celebrating 30 years of providing professional family support!

Lots of plans for the year ahead culminating in the Family Weekend at the Hilton Hotel, Northampton 9th,10th, 11th October 2015. Booking forms will be going out with the Summer Rett News. 

We are Rett UK (formerly known as the Rett Syndrome Association UK). We are the only charity who provide professional support to people living with Rett syndrome across the UK.


Rett UK founded in 1985 round a kitchen table by Yvonne Milne MBE. Since then we have grown to be the leading provider of information to not only families but also medical professionals new to the world of Rett syndrome.


Rett UK supports our families through a national helpline, including telephone and email support, co-ordinates Rett specialist clinics in conjunction with the NHS, organise support groups and have a dedicated parental contact network.


We are a small team working on a national level. We receive NO government  or lottery funding and rely entirely on donations and grants to fund our work.





We provide the following services for parents, carers, families and professionals: