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SUPPORT HELPLINE: 01582 798911

We are Rett UK (formerly known as the Rett Syndrome Association UK). We are the only charity who provide professional support to people living with Rett syndrome across the UK.


Rett UK founded in 1985 round a kitchen table by Yvonne Milne MBE. Since then we have grown to be the leading provider of information to not only families but also medical professionals new to the world of Rett syndrome.


Rett UK supports our families through a national helpline, including telephone and email support, co-ordinates Rett specialist clinics in conjunction with the NHS, organise support groups and have a dedicated parental contact network.


We are a small team working on a national level. We receive NO government  or lottery funding and rely entirely on donations and grants to fund our work.





We provide the following services for parents, carers, families and professionals: