Rett UK: Support today, hope for tomorrow for people with Rett syndrome
SUPPORT HELPLINE: 01582 798911
   

Factfile: 

Rett UK

Langham House West

Mill Street

Luton

LU1 2NA

 

Support Helpline: 01582 798 911

 

Support Email:  support@rettuk.org

 

General Enquries and Fundraising: 01582 798 910

Email: info@rettuk.org

 

We are Rett UK (formerly known as the Rett Syndrome Association UK). We are the only charity who provide professional support to people living with Rett syndrome across the UK.

 

Rett UK founded in 1985 round a kitchen table by Yvonne Milne MBE. Since then we have grown to be the leading provider of information to not only families but also medical professionals new to the world of Rett syndrome.

 

Rett UK supports our families through a national helpline, including telephone and email support, co-ordinates Rett specialist clinics in conjunction with the NHS, organise support groups and have a dedicated parental contact network.

 

We are a small team working on a national level. We receive NO government  or lottery funding and rely entirely on donations and grants to fund our work.

 

 

 

SERVICES WE PROVIDE

We provide the following services for parents, carers, families and professionals: