To support families and carers and ensure that all people with Rett syndrome have access to best practice in diagnosis, treatment and care.

To promote, support and encourage research into the genetic, therapeutic and social aspects of Rett syndrome - and towards an eventual cure.

To increase the awareness of Rett syndrome and the issues facing all people with Rett syndrome, their families and their carers.

We provide the following services for parents, carers, families and professionals: