Action for Medical Research   Carers UK   Caring for Carers Ireland   Contact a Family   Council for Disabled Children   Epilepsy Action   National Society for Epilepsy   E-Rare   Every Disabled Child Matters (EDCM)   Foundation for People with Learning Disabilities   Genetic Alliance UK   International Foundation for CDKL5 Research   Orphanet   PMLD Network   The Princess Royal Trust for Carers   MECP2 Mutation Database   Mencap   MRC London Brain Bank   Rett Base IRSF MECP2 Mutation Database   Scoliosis Association (UK)   Transition Network