Rett UK: Support today, hope for tomorrow for people with Rett syndrome
SUPPORT HELPLINE: 01582 798911

Rett syndrome is a rare neurological disorder affecting mainly females and very few males.

Although present at birth, it is usually undetected until major regression occurs at around one year of age, when children will lose acquired skills - this can be accompanied by distress and anxiety.  

Rett UK supports families living with Rett syndrome from point of diagnosis and throughout the many challenges they face.