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Equipment!

EQUIPMENT AT HOME As my sister cannot move herself, she needs a lot of equipment so that she can be moved around. When she was younger, my sister didn’t need […]

rare disease day photo Leah

Friendships by Leah

FRIENDSHIPS My sister goes to a special needs school, where she has made many friends. Though her class is small,  she knows many of the children her age. There is […]

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Position Statement from Rett UK with regard to alliance with Reverse Rett

‘In 2015, Rett UK and Reverse Rett announced an alliance to show a commitment to work more closely together where there were mutual interests, avoiding the duplication of services and […]

rare disease day photo Leah

Holidays by Leah

HOLIDAYS My family and I always have a lot of fun while we are on holiday. Though there are, understandably, sometimes accessibility problems, we have been able to travel to […]

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rare disease day photo Leah

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EQUIPMENT AT HOME As my sister cannot move herself, she needs a lot of equipment so that she can be moved around. When she was younger, my sister didn’t need […]

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Rett UK are a lifeline to us Rett Families. I don’t know what I would have done without them.

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