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Sharing Our Stories – Making a Difference!

Personal stories from our families showing the impact of our work

Gwenda and Grace

Rett UK are a lifeline to us Rett Families. I don’t know what I would have done without them. Following diagnosis they wereaboutRett2 there for us supporting and advising and helped greatly. Their ongoing support is so valuable. There is always a friendly, supportive, empathetic person at the end of the phone to listen and help no matter what you need. The regional days, family weekends and support groups help us to meet other families and would not happen without Rett UK. A huge thank you to you all.

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susanne and mia


Guest blog: Many thanks to Susanne Crosby, whose daughter Mia has Rett syndrome for letting us share her blog originally written for Scope after Susanne was involved with their Face […]

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Exceptional support! I have phoned Rett UK numerous times and have always found the staff informative, professional, with the ability to empathise. I am always left with the feeling that I’m not alone in my struggle to secure the best for my daughter. Rett UK go above and beyond and I can’t thank them enough!

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