13th and 14th October 2017 in Kent – venue to be confirmed.
Our AGM will be on Saturday 14th October 2017.
Great opportunity to meet other families, share experiences, tips and gain mutual support plus hear from our experienced and knowledgeable professionals on a range of Rett related topics such as epilepsy, scoliosis, breathing and sleep issues and the latest research news. You will also have the chance to sign up for some 1:1 sessions which may include music therapy, physio, dental health and eye gaze.
This is a free event for families and anyone involved in supporting someone who has Rett syndrome. We will be posting out invites to our families in the area but if you would like to invite someone who is working with your son or daughter please ask them to contact us for booking information. We strongly encourage you to use this opportunity to get your professionals to come along and listen to the presentations.
Volunteer Carers Needed!
We will provide childcare and activities for people with Rett syndrome so carers can listen to the presentations. We would love to hear from any support staff such as mid day supervisors or teaching assistants who would be interested in being part of the care team for the Saturday. We give a £50 thank you to any carers helping on the day.
Please save the date and look out for more information in the future.